- - Jesy Nelson’s Fiancé Zion Foster Shares Emotional Poem About Their 'Warrior' Daughters After Revealing Their Twins May Never Walk

Raven BrunnerJanuary 16, 2026 at 3:53 AM

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Jesy Nelson/Instagram (2)

Jesy Nelson and Zion Foster; Ocean Jade and Story Monroe -

Jesy Nelson’s fiancé Zion Foster is opening up about their baby daughters' spinal muscular atrophy diagnosis

The former Little Mix star and Foster welcomed Ocean Jade and Story Monroe in May 2025

"And it became so clear, doctors only go near what they can measure, so what’s certain? I watch your smiles like sunsets, not promised, but real. I listen to you babble the sweetest melodies," Foster said in his poem

Jesy Nelson’s fiancé Zion Foster is opening up about their baby daughters’ rare health diagnosis.

The former Little Mix star, 34, and Foster welcomed twins Ocean Jade and Story Monroe about eight months ago in May 2025.

Earlier this month, Nelson revealed that the two babies were diagnosed with a rare neuromuscular disorder called spinal muscular atrophy (SMA).

SMA is an inherited neuromuscular disorder that weakens and wastes away muscles due to the loss of a specific nerve cell in your spinal cord that controls muscle movement, according to the Cleveland Clinic.

Foster shared a video of himself reading his emotional poem about his "two little warrior girls" on Instagram on Jan. 14.

Jesy Nelson/Instagram

Jesy Nelson and Zion Foster with their baby daughters.

"We are all one. Jesy addressing a huge flaw in our healthcare system is the definition of a superwoman. Reality is, it’s indefensible and needs to be changed, simple. Test kids at birth for SMA in the UK now that there are revolutionary treatments available," he captioned the post, before thanking the SMA community for their support.

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In the video, the caring father said, "They said it’s unlikely you’ll walk, you may not be able to talk, probably won’t be able to hold your head up, that’s what me and Jesy heard, SMA Type 1."

"And it became so clear, doctors only go near what they can measure, so what’s certain? I watch your smiles like sunsets, not promised, but real. I listen to you babble the sweetest melodies," Foster continued. "In the moment it makes me wonder, if I keep telling you who I want you to be, what I want you to do, what I expect from you, am I loving you or am I loving my fear?"

Ken McKay/ITV/Shutterstock

Jesy Nelson and Zion Foster with their baby girls, Ocean Jade and Story Monroe.

"If I take you for how God knitted you, just as you are, nothing removed, am I loving you? Am I accepting you?" he asked and then addressed his daughters directly. "Story, is your heart okay? Ocean, how’s your mind? I hear strength in your lungs every time you cry, two little warrior girls who already know how to fight."

"Honestly, my worry isn’t the milestones, isn’t forcing life to look a different way. My worry is quieter than that, deeper. It’s about accepting you, loving you for who you are right now, without conditions. No matter what tomorrow brings, and no matter what yesterday was," he concluded his poem.

Nelson revealed her daughters' diagnoses in an Instagram video on Jan. 4, in which she recalled being told when leaving the Neonatal Intensive Care Unit not to compare her daughters with other babies, as they were born premature at 31 weeks.

The parents later noticed that the twins weren't showing as much movement in their legs as they should be, and they would struggle to "feed properly."

Nelson also broke down in tears as she remembered being told her girls would most likely be disabled as a result of their condition and that they would need treatment immediately.

"We were told that they’re probably never gonna be able to walk, they probably will never regain their neck strength so they will be disabled. And so the best thing we can do right now is to get them treatment and then just hope for the best," she said.

on People

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Source: “AOL Entertainment”